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Sunday 21 August 2016

Review of Harry Potter and The Cursed Child

It was my 28th birthday on the 18th August and one of my gifts from my amazing friend/neighbour/carer was this book:

 
 
*******Spoiler alert *********
I was unsure how I would get on with it at first as I was aware it was written like a script and was in fact a play.
 
I finished it in 2 days and loved it! I loved how there were so many expectations placed on Albus because of who he was, just as Harry had found when he reached Hogwarts. I also love how there are similarities between the two such as Albus' sense of adventure and willingness to challenge the status quo and their loyalty to their friends. Despite this Albus is convinced that he is a disappointment to his father.
 
I love the awkward moments between Albus and Harry as Harry struggles with fatherhood. I also love the way these scenes are written as there is so much unsaid that you sense between the lines.
I was pleased to see that the main characters were back and had developed, grown in the time between books, with Draco still been an arrogant twat but mellowing as he goes through the struggle of been a 'single father' whose son is in danger.
 
What I also likes is that when the Time Turner took them back, the resulting changes seemed to answer the 'what ifs?' from the books. Questions such as what if cedric diggory wasn't killed, what if voldemort won and what if Ron and heroine never got together?
 
I felt that the final fight with Delphi could have been a bit longer as it all seemed to be over too quickly for me. The touching scene at the end with Harry reliving the moment he became an orphan this time with his family and friends by his side was almost a tear jerker.
 
There's something still creepy about voldemort saying "haaaaaarrry potteeer" even now.
 
This was a great read and it made me feel all nostalgic again, remembering my excitement at reading the original series and I hope there are more books to follow, I understand that this may not be what everyone wants, fearing that if the series was extended it would loose some of its 'magic'. (you see what I did there?:p) But I still love to revisit these character's and would like to continue seeing them grow and develop over time.
 
Now I need something else to get hooked into, any suggestions?
 
As always thanks for reading,
Laura:)

Sunday 14 August 2016

Unplanned trip anxiety!

I'm been brave this September.  I normally don't go anywhere without my trusty rucksack armed with all kinds of things to help me with heat intolerance, cold intolerance, pain, dislocations, asthma and more. Even with all that I Then have to know where I'm going and know where toilets, disabled accessible facilities are and have a plan B for everything.
I think this is typical for most with a chronic illness. Either that or I'm just an anxious control freak! It now comes naturally to me to go out prepared for almost anything my body can throw at me. This enables me to enjoy myself, relax and know that if anything happen I wont have to go running home or ruin the day.
All this goes out the window when I have to go somewhere I don't know. My dad has planned a suprise trip for me. It's a lovely exciting idea BUT it's left me quite anxious. I don't know where we're going. I've to turn up at my Dads house on a specified date and time and he will hand me information about where I'm going, a postcode for my satnav and booking information. All I know is its camping and its for 4 days.
I don't know how far a drive it is, if there's blue badge parking, how accessible places I may need or want to visit are. I don't know if there's pharmacys or doctor's nearby. I don't even know where I'm staying.
Will it be big enough for my power chair?
Will it have accessible bathrooms?
Will there even be somewhere to charge my power chair!?
Will I be able to make myself comfortable and give myself some self care if I have a flare up?
What activities will I be able to participate in?
Will attractions I want to visit be accessible?
I have to be brave and put trust in my dad that he knows my needs well enough to have thought of all this. But then there's the other issue its CAMPING- I'm extremely sensitive to temperatures, too hot my POTS doesn't like it, too cold my Raynaud's and Fibromyalgia doesn't like it. I cant exactly have air conditioning or heating in a tent. My air bed is not that comfy and I wont have a sofa to lay on if I'm having a bad fatigue day.
To tackle this I'm taking lots of pillows and blankets so I can make my own nest of comfy to crash in, this will also help if it gets cold. I hope the campsite has a pool so I can cool down if its too hot. Once I know where I'm going I can do some research and find some places to visit or activities I can do. Whatever happens its my holiday and I'm determined to enjoy it.
It made me wonder how many other spoonies out there have anxiety around unplanned / unexpected trips? Am I the only one?
Of course once I get back I will post about how I got on and how I survived!
As always thanks for reading,
Laura :)

Sunday 7 August 2016

Orthotics appointments and support braces


I'm not doing too well this week so please excuse the dodgy photos! If your in the same boat check out my series on self care.

Here's my experience with orthotics and support braces:

After been diagnosed with Ehler Danlos syndrome (hypermobility type) my next Physio appointment went a little differently. I informed her of the new diagnosis and she proceeded to check my joints for hyperextension. I never realised what my joints did wasn't normal until this point, apparently your knees are not supposed to bend backwards and your wrists aren't supposed to rotate 360 degrees : who knew?!

Cut a long story short my GP referred me to Orthotics for some knee and wrist braces.

At My first appointment the Orthotist asked me to hyper extend my joints and to try and walk ( I wobble at best even with a stick) and then move my wrists in all directions to see what was needed and where. He decided that I still had good muscle and joint control in my left knee but both wrists and right knee were quite bad. I was measured up and a second appointment was made.

At my second appointment I was given two wrist braces and a knee brace, the Orthotist showed me how to put them on and checked their fit and suitability.

This is a Medi knee support, its comfortable but refused to stay in place on me, it didn't matter whether I wore it over clothes or on bare skin it would always wiggle down and be really lose around the top. They have wedges on the side that can be removed if more or less support is needed over time.

These Beagle standard wrist supports were ok, they have a metal rod to support the wrist on the underside which can be removed so they can be washed. The only problem I found was that the pressure of the strap between my thumb and finger was too uncomfortable for me.

Because of the problems I had with this first lot of orthotics I had a follow up appointment and was given different wrist and knee braces:
Osso form fit wrist brace




Townsend knee brace

This brace was less comfortable and not as supportive but stays in place. I suppose there's no point having a comfortable supportive brace if it doesn't stay where its needed. The wrist brace is more comfortable than the last and has a cotton mesh on the inside making it breathable. It cant go in the wash but it feels much more supportive than my other wrist braces. These were more expensive so the Orthotist wanted to try me with the Osso one on my right wrist and keep the Beagle one on my left wrist rather than supplying me with one for both wrists.

So far so good. I tend to wear my knee brace when I know I will be wobbling about the house all day or not using my power chair and my wrist brace when I'm using my hands a lot like crafting, writing or when they hurt. I avoid wearing them all the time as I want my muscles to keep the strength they have but at the same time want to prevent any deterioration in my joints. Its a balancing act.

Any questions? What orthotics if any have you found useful? Comment below

As always, thanks for reading,
Laura :)

Check back next Sunday for my post on anxiety around unplanned events.

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